New Projects Seminar Series at the GSSR – 6

The GSSR announces the sixth in our new series of seminars addressed both to doctoral students and academic staff. The seminars aim to bring together students and established researchers working in the same field, thus promoting closer interaction and future collaboration between them.

During the seminars doctoral students present for discussion well-advanced research projects, with experienced scholars from various academic centres in Poland and abroad invited to take the role of commentators.

The seminars take place on the Zoom platform and are open to all.

This seminar is scheduled for May 5thth at 18:00 Warsaw time (CET, GMT+1) with Katarzyna Król presenting the topic, Making sense of biomedical knowledge: mothers and rare inborn errors of metabolism, and Daniel Navon (UC San Diego) as commentator.

Join Zoom Meeting

https://us02web.zoom.us/j/82317845130?pwd=d0NjVjAwbmFsYzVGYnp0M2x0a0dMZz09

 Meeting ID: 823 1784 5130

Passcode: 573027

 Programme

  • 18:00  Edit Zgut– Chair of the seminar – Welcome address
  • 18:05  Małgorzata Rajtar – Socialization of biomedicine – introductory remarks
  • 18:10  Katrzyna Król Making sense of biomedical knowledge: mothers and rare inborn errors of metabolism  
  • 18:40  Daniel Navon ( UC San Diego) – Commentator
  • 18:55 Discussion
  • 19:30  Closing remarks

Next seminar:

May 25th at 14:00 Steve Davis – Mooring and anchoring in the ‘angloscape’: exploring the shifting sands of privilege for British nationals living long-term in Poland

Making sense of biomedical knowledge: mothers and rare inborn errors of metabolism  

Abstract

Making sense of biomedical knowledge: mothers and rare inborn errors of metabolism  

Drawing on ethnographic fieldwork conducted in Poland, in this presentation I will discuss some particular aspects of how the mothers of children diagnosed with rare inborn errors of metabolism understand medical knowledge. Rare inborn errors of metabolism is often a severe, chronic, disabling, and possibly lethal condition that negatively impacts the quality of life of patients and their families. Treatment itself is clinically challenging and it subjects patients, often children, to a dietary regimen for the rest of their lives. The engagement of patients and their caregivers constitutes one of the prerequisites for the challenging lifelong treatment. However, this dietary treatment significantly differs from the „traditional” models of feeding children. Therefore, it is crucial to understand the ways in which mothers, the primary caregivers, understand and negotiate biomedical knowledge and propose additional, other-than-biomedical understandings of possible medical treatments. In order to do so, I will focus mainly on attitudes towards gastrostomy tubes.

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